Long COVID

An article at the BBC concerned with “ Long -Covid”  post – viral condition,  makes sense to hundreds if not thousands of sufferers of M.E or CFS and lesser known Fatigue Syndromes, Fibromyalgia &c.

However, one has to ask why unsympathetic clinicians & consultant virologists in the 1980’s & 90’s were prepared to label sufferers of such conditions as “neurotic” or not actually having anything wrong with them.

It is the personal experience of our benefits advisors in the Office who have very long experience when filling out those lengthy DWP forms with our clients, who have been reporting these symptoms for years, that there just seemed to be many and frequent reports of these debilitating symptoms.  

Most of these clients had long, needless battles with Primary and Secondary medical staff who were not disposed to believe in the client’s experiences.  It seemed clear to us, as a reporting charity we were hearing more about this frequent and debilitating condition.  We are not medically trained, but when clients continually tell us of a condition that debilitates them and that is repeated by many other clients in similar circumstances over the years, then we know that something real is happening.  Not everybody is neurotic or in need of psychological help. Though being continually disbelieved and treated with disdain by doctors and work colleagues will probably result in a client requiring such help.

It appears now, that because of the way that the Covid -19 virus is affecting all ages and levels of fitness, many people are being, or will be debilitated by this post -viral condition.   Maybe Doctors are faced with evidence that they cannot simply brush off. 

People have been reporting these symptoms following viral infection, for decades, but in many cases, my own included, we were ignored or labelled by clinicians who felt the symptoms had nothing to do with organic illness.  

The UK Government’ nasty drive toward labelling debilitated and disabled people as workshy and fraudulent when they applied for help might change now.   The right -wing cavalier and brash attitude toward the disabled might also change, at least for a while – considering that the Tory -in -Charge has also had the virus and it is suspected that he might be suffering “ Long -Covid”.   

However, in the world of Politics long -term debilitating illness is seen as weakness. Welcome to the world of the disabled Mr Johnson.     

I wonder if the publicity and frequency of this condition has created conditions that attract research money to investigate the causes of this Post -Viral Syndrome.   

This BBC article – which will also feature on BBC Reporting Scotland on  Wednesday 11TH and Thursday 12Th – has a quote that is interesting:

“Health professionals from the Scottish Intercollegiate Guidelines Network (SIGN), the National Institute for Health and Care Excellence (NICE) and the Royal College of General Practitioners (RCGP) have now defined the term Post-Covid Syndrome.

They described it as “signs and symptoms that develop during or following an infection consistent with Covid-19 which continue for more than 12 weeks and are not explained by an alternative diagnosis”.

The condition has been likened to post-viral fatigue or chronic fatigue syndrome (CFS/ME) – but the reality for individuals is very varied”

That is all very welcome, but please do NOT suggest to sufferers of this condition and related conditions that this is all newly discovered. Research money was never readily available in the past for what was once disparagingly termed by the right -wing press “ Yuppie Flu”,  and sufferers were seen as weak &, workshy. 

We can tell you otherwise, and along with other charities have been doing so for decades.

Esplanade Cycling

Aberdeen Beach Esplanade has been transformed.

Whether that is for the good or worse is very debatable. 

However, the City Council started this “Space for People”project to use the space on the Esplanade to install two cycle lanes, and separate that from the road by large bollards and painting single thick white lines to signify “do not cross”.

This report in the local Evening Express  probably says it all as regards this project.

I went down there on Monday 7 September 2020, and was not all impressed with the arrangements.

Parking my car out where the middle of the road, used to be was unnerving, but probably more concerning was the realisation that in order to access the beach or the lower Esplanade/promenade, it would be necessary to unload or open passenger doors into the cycle lane. 

This means that wheelchairs, disabled people, children and pushchairs have to unload – not onto the pavement as before – but onto a live cycle lane. This “cycleway”is allegedly for two -way north and south for cyclists.

My experience that day was that cyclists were riding two abreast in either direction, completely ignoring the signs, and no doubt grateful for such a sizeable chunk of road. Kerbs are difficult enough overcome for many disabled people, whether in wheelchairs or trying to walk. To be forced into crossing a dual cycle lane, with cyclists whizzing along two by two was yet another hazard to overcome whilst attempting to overcome a kerb.

Admittedly there did seem to be a dearth of cyclists, and in fact when I went for my walk, the cyclists all seemed to be using the lower esplanade anyway.  Years ago, there used to be signs at the area around the Beach ballroom that forbade cycles on the lower prom. These signs were always ignored, and will probably continue to be ignored. Who or what is going to make cyclists use the new cycle lanes created just for them?  Most of the encounters I have had with cyclists on the lower promenade have  all been “near hits”as they approach from behind at speed in silent stealth mode seemingly unable to warn of their approach. Just too bad if one happens to stop, change direction or wander sideways to allow others to pass.

“Space for People is an allegedly temporary project set –up in various parts of the City to give room to people for social –distancing.  On reading it I see a back –door to introduce schemes that would not be approved in any other time without safety concerns being approved. Cycle lanes and pedestrian areas are good things. However, “Shared Space”does need guidance from disability groups.

( see the article in this blog about so –called “Shared Space”)

 As usual, disabled folk are last in the thought processes of planning by Council Officials who have already changed the City centre which affects sight –impaired people  and these sight –impaired folk no longer feel confident in walking there.

 Of course, if planning officials are listening to the cycle, green, health and exercise, or the scientific lobby during this pandemic then it appears that nobody is giving any thought or listening to the Disabled Lobby – or more likely – simply forgot to ask them.  Inviting consultation in such a quiet way smacks of wanting to rush through a decision already made.

As regards the Esplanade,  planners seem to have simply forgotten that deaf, sight –impaired, aged, and infirm people will now have to enter into a possible danger zone to access the pavement.   As will all those who want access to the Beach itself, like parents with children, water sports enthusiasts, and folk who just needing to walk on the sand like e tourists and visitors to the beach.

If cyclists had bells on the bikes, wore high visibility and used flashing or high intensity lights during daylight hours as well, then this hasty and ill –thought out scheme might be tolerated..  

Responsible commuting cyclists probably do all these things for their own safety. However, cycles have not been required to have a bell fitted by law since 1999 at least. 

Not the best thought –out plan ever foisted on Aberdeen Citizens and visitors.  I have a feeling though that once all these schemes become “normal”then they will no longer be temporary.

I am not a football fan, but I foresee real problems there as Pittodrie gradually re-opens and travelling fans from outside the City try to park vehicles where they traditionally parked them.   I think the term used will be gridlock. At least until football moves out of town to near Westhill.

Then again maybe gridlock, and “encouragement”to abandon petrol and diesel vehicles  is what the planners want.  

 Being hit and injured by a bike, or electric vehicle is just as bad as being hit by one powered by fossil fuel.

Cyclists could maybe make themselves acquaint with what Cycling UK say on responsible cycling as regards Highway code and legal use of the bike.

RetroFest

We noticed that, while there was plenty of activities available during the week, people often found themselves spending their weekends in isolation. This problem became a passion project for our IT guy Jay and he came up with a great solution.

Once a month, our office is taken over by hordes of gamers intent on battling ancient evils, winning the grand prix and saving the princess from another castle. This is RetroFest.

Held in our office on a Saturday afternoon, RetroFest gives people a chance to meet new friends and hang-out in a relaxed atmosphere while playing a few retro games. Consoles and PC’s are available to cover a huge range of your nostalgic needs and we’re always adding more.

As well as casual gaming, there are often organised tournaments.

Like all projects at Aberdeen Action on Disability, RetroFest is free to come along and join in with (though there may be a small entry fee for any tournaments).

Everyone is welcome, disability or not. Bring your friends.

For more details, check out our dedicated RetroFest Facebook page, or the RetroFest website

Getting To Us

One topic that seems to arise regularly in discussion at either the social group or with our volunteers is the subject of travel to our location at Kettock Lodge, Campus Two , 2 Balgownie Drive, Bridge of Don, Aberdeen.

There appears to be a perception that our Office is somehow “remote” or out of the way.  

Let’s try to bust a few perception myths.

Our old premises at Spring Garden, were situated on George Street, which is close to Hutcheon Street. Personally I would not regard that as “City Centre” , although many others regarded it as such. Spring Garden had about two car parking spaces with maybe another if we moved those who continually parked in the controlled spaces. To get to George Street, required one bus if you were lucky enough to live on the 17, 18 or 19 Bus Routes run by First Bus, which went between Dyce – Bucksburn To Faulds Gate: or 19 Tillydrone out to Culter.

So depending on where folk lived, two buses were probably required to get to Spring Garden.  

There was a double yellow line at the front door and a busy road that did not help with disembarking passengers from vehicles.

All in all, for disabled folk this was not so easy to get to as folk remember. Getting off a bus coming from the city centre involved crossing George Street and navigating badly and illegally parked vehicles, large waste bins and uneven flagstone pavements.

Kettock Lodge is a modern building with a huge amount of car parking, flat tarmac and slabbed walkways to a controlled access door, and lift to the Office door.

To get there I suggest that people consult Traveline Scotland.

for their particular journey- but a good rule of thumb is that the No.1 stops just outside.

For example ; a client coming from Garthdee to Bridge of Don for a 12 Noon appointment on Wednesday 10 April 2019. :

Leave 10:53 – Garthdee, adjacent to Morrison Drive on Auchinyell Road

Bus

Service Number 1

Operator First Aberdeen

Route Garthdee + Auchinyell circular – Danestone

Duration 43 mins

Fares £2.60

The No 1 Bus is the best bus for our Office and wherever one is coming from in Aberdeen (except on the route of the No 1) it would require a connection somewhere. The number 18 to Dyce does stop at the bottom of Grandholm Brae just over the Diamond Bridge, but for anyone with a mobility related disability that is a very difficult uphill walk and is not advisable if that option is offered. .

This website will also help anyone to see their options for travel to clinics, social appointments or our office or social group.

One option that not many people know about is the community bus for the disabled, that is operated by the City of Aberdeen. To find out more about this community bus in Aberdeen visit this website. h

 “ Community transport services operates in Aberdeen City area between 10am and 2:30pm, Monday to Friday. 

There is also a Lower Deeside Service which operates on Monday and Thursday only between 10:30am and 2pm.

The service provides a door to door service within a particular area for those who are unable to use conventional bus services, the elderly and disabled. Our vehicles are fully wheelchair accessible.

There is no restriction on journey origin or destination within the local area of your collection and all services will travel to the City Centre. Requests for travel between different designated routes will be subject to availability.

As exact travel times cannot be guaranteed, we ask that people travel within flexible times to allow as many people as possible to use the service.”

Our Office is as accessible, and in fact offers better parking and facilities for our members and clients.

One day, with all the house–building that is going on, we will be at the centre of the community in Bridge of Don, and doubtless more buses will pass by our Office.

Aberdeen Action on Disability Social Activities Group

At AAD, we know how lonely it can be coping with a disability at home on a tight budget. So we are delighted to have recently received funding from the People’s Health Lottery to start up a new social group for people with disabilities in the Aberdeen area.

The aim of the group is to give people the opportunity to explore their interests in a relaxed environment with others who share similar experiences. Participants will be able to decide between themselves the activities they would like to pursue, and the pace at which they do so. Some people might wish to start up something they haven’t tried before, while others can take the opportunity to teach their existing skills to the rest of the group. Activities might include crafting, gaming, music, literature, exercise, or simply having a cup of tea. It’s up to you – it’s your group. Whatever point you are starting from, we hope that you will have fun and grow in confidence.   

The first group sessions will take place on Wednesday 23rd and Friday 25th Jan from 12pm to 3pm, and the same time every Wednesday and Friday thereafter. The first few meetings will focus on giving people a chance to get to know each other and share their ideas about what they would like to do. Participants are welcome to come to one or both weekly sessions on a regular basis, or whenever their health permits.

Our sessions will primarily be held on our premises at Bridge of Don. We have a fantastic large indoor space that can be used both for activities and relaxation. We do understand that some people may find it difficult to travel here. Unfortunately, AAD does not have the resources to provide transport, but we will be looking for other sources of transport assistance. Indeed, suggestions on this matter would be welcome. For the moment, though, there is a frequent bus service, with the no.1 stopping opposite the building. We also have disabled parking facilities at the front door, and further parking at the rear.